Today was part two of the research symposium for Preeclampsia in Toronto and as part of this both my sister-in-law Marg and I met with Eleni Tsigas, the Executive Director of the Preeclampsia Foundation, United States. Also in attendance were others interested in raising awareness for Preeclampsia by starting a Canadian Chapter. I plan to work with these other women to start the Foundation in Canada so the women of our country can be better informed and supported, to minimize the devastation this disease has on families, and to support further research in finding a cure.
For day twenty-three, my goal is to continue to share my story in the hopes it will help someone else along the way. As the meeting got underway we were asked to tell our story of what brought us. The stories were touching; it amazes me how Preeclampsia affects so many families yet many have never heard of it.
This was the third time for me to share and well, it was hard to do but I realized today that the more you tell it the easier it gets. By telling our story it not only helps heal ourselves but also helps to heal others as when the other women shared, the pain in my heart felt lighter.
Preeclampsia/Hellp Syndrome is a very well hidden illness. So many people have never heard of the disease and how it can destroy families. I think it is so important to raise awareness and I am fully committed in doing so. I can’t change the ending but hopefully Jonah’s death will help others understand the impact of this disease, and my story’s happy ending can be one of healing.
Day Twenty-three: Share your story.